Rare Disease & Complex Profiles

When your child's diagnosis is rare, the school doesn't know what to do with them. I do.

My son Drake has TBR1 — a rare genetic disorder. The school had never heard of it. Most schools haven't.

Book your free 30-minute Advocacy Call →
Drake Choairy smiling outdoors

Specific advocacy for rare kids

Rare diagnoses don't mean lower expectations. They mean more specific advocacy.

The job is not to make the school memorize a diagnosis. The job is to translate your child’s real life into present levels, goals, services, accommodations, and support the team can actually implement.

Families and providers

What people say about Michelle’s advocacy.

★★★★★

“Michelle has now taken those advocacy skills and is helping other moms navigate speech therapy and related services with determination, care, and a true ‘get it done’ attitude. Her impact is truly remarkable.”

Andreane Gaulin, CCC-SLP, BCBA

SLP, BCBA

★★★★★

“Michelle’s attentive and compassionate approach has been invaluable as we navigate the complexities of my daughter’s IEP.”

Flavia Duncan

Mother of a Complex Kid

★★★★★

“Michelle understood our situation in one call. She listened, then told me exactly what to do next. That call changed our IEP.”

Eric N.

New Jersey · Parent

For complex profiles, the call is where we start making the plan clearer.

Book your free 30-minute Advocacy Call →Apply for THRIVE Concierge →